Hi everyone,
Just a quick note...
As some of you know, we decided to consult again with a neuroblastoma doctor at Memorial Sloan Kettering in New York (as we did last summer).
The docs in Boston don't feel the treatment options remaining here can move Ryan toward remission.
NY has a monoclonal antibody therapy that is not available in Boston.
Sloan wants to do their own testing on Ryan to get an updated picture of where his disease is.
Tomorrow we leave to head down and he will have 4 days of tests - no treatment yet.
I will update again when we get back and know what comes next.
As always, thank-you for your prayers for Ryan.
Love,
Norma
